Adam is still recovering from his first chemo treatment but we are seeing small improvements day by day.
I woke up to this BIG SMILE this morning ?
His belly got another 2 cm smaller in circumference from yesterday’s measurement. His weight also went down by 0.7 kg. It seems his left eye is also a little more open today than it was yesterday!
The doctors have now prioritized his eating and nutrition, so it’s extremely important that he eats well and reaches his “feeding goal” based on what the nutritionist has recommended.
Adam is still eating through the feeding (NG) tube. However, yesterday he vomited twice because we think the feedings are still too large for his stomach capacity (36 ounces/day). ? So this morning we reduced his tube feeding volume to something much less (24 ounces/day). But then tonight, again he vomited ?. So right now we are still trying to figure out what volume his stomach can tolerate. The nutritionist seems very aggressive in how much she wants Adam to eat. But we’ve asked for a less aggressive goal (so as not to be counterproductive). Please pray that Adam’s eating will improve, so that he gets the nutrition he needs.
Lastly, we found out tonight that Adam may need to undergo a small surgical procedure next week in order to do a biopsy of his tumor so they can determine how aggressive the tumor is. The biopsy will tell the doctors whether his neuroblastoma is N-MYC amplified or not, which will ultimately determine the final prognosis and thus the treatment plan. If N-MYC amplified, this means he is high risk and a more aggressive treatment is required and also lengthier treatment duration. More details hopefully next week.
Please continue to pray for us and please know that even though we may not be responding to your individual comments, we are so thankful to those of you who are following this blog and fervently praying for us EVERY SINGLE DAY. We love you all.
Hoping his feedings get figured out soon and that the biopsy goes without any complication. We are so eager to hear the results from the gene testing. Lord, we love You.
Hugs to sweet little Adam!! ?
We are truly sorry that you have to go through this. It is heartbreaking. Thinking of you all everyday and sending our love! Stay strong and hopeful. Please let us know if there is anything we can do at all. We are here for you.
I know you may not know me, but I am a serving one at the FTTMA. I am viewing your daily posts. I am happy to see improvements in little Adam. I was very touched when hearing about this situation you all are passing through. I also have passed through some very difficult and similar situations. I hope Adam will be able to tolerate more food soon. May the Lord supply you with Himself as your all-sufficient grace. Amen
How I love you all and continue to pray for direction and for Adam’s progress. Thank you, Lord for Your daily supply and little encouraging steps.
Such a beautiful little smile. New mercies every morning. May his eating get a little bit better every day, Lord. Increase his tummies’ capacity. We keep looking to You, Lord, as the Great Physician caring for little Adam. Thank you, Lord. ?
What a precious smile to wake up to! Praying for you all! I would love to send you all a meal if you post the link:)
so glad he is making small progress each day. may the Lord cover the procedure and may he gets the nutrition he needs. pray that his biopsy result will be ecocueging.
Definitely very happy to see him smiling! And very happy to see the progress he is making.
Thank you for taking the time to give us updates. Much grace to the entire family.
I miss you little Adam! So happy to see your smiling face ♥️ Thinking about you guys everyday!
So happy to see him smiling on these pics. Brings me joy. Thanks for sharing. We continue to stand one with you in prayer. May the Lord continue to be Adam’s Great Physician. We love you all! <3