Philippians 1:19 – For I know that for me this will turn out to salvation through your petition and the bountiful supply of the Spirit of Jesus Christ
Dear All, It has been 6 months since Adam finished treatment. As planned, he is having another set of MIBG and MRI scans to ensure that the cancer remains gone. These scans will be done this week on Feb 13 and 15. We will post an update once we have received the results. We don’t […]
Hi Everyone, Adam will be undergoing a procedure tomorrow to take a sample of his bone marrow, followed by a body scan on Friday. Both of these will require sedation. After the bone marrow procedure, he’ll get an injection needed for Friday’s scan, so it will be a long day involving no food prior to […]
Adam is recovering from his 6th round of chemo, and he’s doing well. Despite some loss of appetite, he’s been gaining weight steadily. He recently began eating some soft solid foods, which has helped a lot. A week from today, he will have his 7th round of chemo, with his 8th (and final) round scheduled […]
As most of you all know, Adam had his MIBG scan on May 9, and we finally received the results of this scan last week. The results of Adam’s scan showed that the cancer has receded and is no longer picked up by the scans. In other words, the visible active neuroblastoma cells have been […]
Adam’s MIBG scan went smoothly on Wednesday, and we’re expecting results by next Monday. We hope that this will show that the chemo has been working, and we’re on track. His oncologist also wanted to see whether the tumor in the bones behind his left eye is completely gone. This is the only way for […]
Last night we got the call we’ve been waiting for, for the last two months. Adam’s biopsy results came back and his neuroblastoma is not NMYC amplified, putting him in the 4s (intermediate risk) category. This is a HUGE relief to us, and a wonderful answer to all of your prayers. This means that his […]
As of last night Adam was allowed to begin eating. We started him out slowly, and he’s ramped up this morning. He’s had 12 oz to eat this morning. His nausea seems to have subsided, and he’s now disconnected from all the tubes and monitor wires. He has been switched to oral pain meds in […]
Last Thursday Adam had another routine blood draw. This time he did not need any transfusions, which means he’s on the upswing! He’s been sleeping well and eating more. Hopefully he gains weight, since he’s plateaued the past couple months. On Monday, March 26th, we have an appointment with our primary oncologist, then on Tuesday […]
The days of being apprehensive of leaving the hospital are gone. Home is so much better. Aside from Adam’s fever, the ER doctors were also very concerned about his lethargy, elevated heart rate and labored breathing, so we were on hold in the ER until they could determine the cause. We were potentially being considered […]
We had our follow up visit this evening. We were hoping to have a diagnosis and clear direction, but it was not to be. The biopsy sample was not sufficient for them to determine NMYC status. So we will be continuing with the intermediate chemo treatment tomorrow. We will go in at 9:00am tomorrow, and […]